DSpace Collection:https://hdl.handle.net/10171/436742024-03-28T20:35:19Z2024-03-28T20:35:19ZDiseño y validación del instrumento competencia de educación para la salud del profesional de enfermeríahttps://hdl.handle.net/10171/652222023-02-06T06:05:08Z2023-01-31T00:00:00ZTitle: Diseño y validación del instrumento competencia de educación para la salud del profesional de enfermería
Abstract: --2023-01-31T00:00:00ZConociendo el significado que tiene para la persona vivir con una insuficiencia cardíaca crónicahttps://hdl.handle.net/10171/600422021-01-27T02:05:29Z2021-01-26T00:00:00ZTitle: Conociendo el significado que tiene para la persona vivir con una insuficiencia cardíaca crónica
Abstract: Introducción: Las enfermedades crónicas y, entre ellas, las enfermedades cardiovasculares son los procesos más prevalentes y que más costes generan a nivel internacional. La insuficiencia cardiaca crónica (ICC) es parte de ellas, ya que es una enfermedad progresiva y debilitante, con múltiples e intensos síntomas y que afecta notablemente al bienestar de la persona. Sin embargo, pese a su gran impacto en múltiples esferas de la vida, la atención sanitaria se centra en la enfermedad y su tratamiento, obviando, en parte, lo que estas personas experimentan.
Objetivo general: Comprender el significado que tiene para la persona la experiencia de vivir con una ICC.
Metodología: Se ha utilizado la fenomenología hermenéutica y, concretamente, la fenomenología de la práctica de Van Manen. Se han mantenido entrevistas conversacionales individuales con 20 pacientes con ICC.
Resultados principales: Se ha desarrollado un texto fenomenológico que recoge los seis temas esenciales que describen esta experiencia: 1) Vivir con una ICC supone un cambio profundo en la persona; 2) La persona que vive con una ICC tiene que aceptar su situación; 3) La persona con una ICC necesita sentir que su vida es normal y mostrarlo así a los demás; 4) La persona con ICC necesita vivir con esperanza; 5) Padecer una ICC hace que la persona tenga continuamente presente el hecho de morir; y 6) La persona con ICC experimenta que su situación influye negativamente en su entorno.
Conclusiones: Este estudio ha evidenciado la gran repercusión de la ICC en la totalidad de la persona y la importancia de que la enfermería se acerque a ella desde una visión unitaria. Además, ha mostrado la necesidad de un cambio de enfoque en el modelo de cuidados, redirigiéndolo hacia una práctica centrada en la persona.2021-01-26T00:00:00ZEstudio de Metodología continuada sobre el abordaje de los factores implicados en la convivencia con la enfermedad de Parkinsonhttps://hdl.handle.net/10171/587112020-07-21T01:14:45Z2020-01-30T00:00:00ZTitle: Estudio de Metodología continuada sobre el abordaje de los factores implicados en la convivencia con la enfermedad de Parkinson
Abstract: The main objective of this study was to determine the relationship between the factors involved in living with Parkinson¿s disease, not only in people affected by it, but also in family carers, in order to design an intervention for this sector of the population, focusing on one of the most influential factors. A mixed-methods study was carried out with an explanatory sequential design in two phases: In the Quantitative Phase, multicentre data collection was carried out at the San Juan Primary Health Centre, in the Clínica Universidad de Navarra and in the Navarre Association of Parkinson¿s disease. Participants were people with PD (n = 91) and carers who are family members (n = 83). The participants filled in a questionnaire which integrated the following scales: Quality of Life Scale, the Psychosocial Adjustment to Illness Scale PAIS-SR, the Brief Cope Scale and the Benefit Finding Scale. In this phase, multiple regression analyses and structural equation modelling were done, in order to determine how the variables which were measured in the questionnaires influence the psychosocial adjustment to illness and quality of life in PD patients and family carers. Among the findings, it should be noted that the variable coping was identified as being one of the main predictors of patients¿ psychosocial adjustment to illness (Adjusted R2 = 0.421; p < 0.001) and of family carers (Adjusted R2 = 0.271; p = 0.001); and that psychosocial adjustment to illness was significantly related to the patients¿ quality of life (Adjusted R2 = 0.660; p < 0.001) and the family carers¿ quality of life (Adjusted R2 = 0.414; p < 0.001). Also, the results of the structural equation modelling established the existence of influences between the quality of life of patients and family carers (p < 0.001). Therefore, in the Qualitative Phase, focus groups were developed (n = 3) in order to explore the area of coping in more depth, and to know how sufferers of PD, family carers and health professionals perceived the idea of designing an intervention aimed at improving how to cope and live with PD, in the sector being studied. The participants were people with PD (n = 9) and relatives (n = 8) and health professionals (n = 5). In this qualitative phase, a content analysis was carried out, from which two themes emerged: ¿The road to coping with illness¿ and ¿Learning to live with Parkinson¿s disease¿. The findings of the first theme, ¿The road to coping with illness,¿ demonstrated the importance of coping with PD, for both sufferers and their family members, and also the coping skills that they used to improve living with PD. Likewise, this point also showed that coping with the illness was a key step towards psychosocial adjustment and living with PD, which confirmed the findings of the previous quantitative phase. Nevertheless, the participants in this phase also noted that coping with an illness was a complex process due to it being influenced by numerous factors, among which they highlighted spiritual values and deficiencies in the healthcare they received. The second theme ¿Learning to live with Parkinson¿s disease¿ found that the participants supported the idea of developing a healthcare intervention to improve coping skills for people with PD and their family carers. The findings served to define the intervention, which was subsequently designed. Finally, in the study which was carried out in this doctoral thesis, a multidisciplanary healthcare intervention was designed which focused on enabling people with PD and their family carers to acquire coping skills which would help their psychosocial adjustment to PD, thus having an impact on their quality of life. The design of this intervention was based on the integration of the quantitative and qualitative phase results of the study, as well as on the results of discussions and observations with professionals within the area of clinical practice.2020-01-30T00:00:00ZLa experiencia de vivir con cáncer en fase avanzada: una aproximación desde la fenomenología de la prácticahttps://hdl.handle.net/10171/437542020-12-04T16:09:03Z2017-08-07T00:00:00ZTitle: La experiencia de vivir con cáncer en fase avanzada: una aproximación desde la fenomenología de la práctica
Abstract: Although the incidence of cancer has recently increased, its mortality is decreasing. So each day more people are living with advanced-stage cancer. For sufferers and those close to them there are consequences in all the spheres of the human being that are related to cancer, dependence, and coping with the end of life. So living with advanced cancer can be the hardest experience they ever face while it can also be an opportunity to find meaning in life and live in coherence to their own values. So they need to feel understood by their healthcare professionals. Without a real understanding of what living with advanced cancer means for the sick person, nursing must be based on caregivers and professionals view of reality. This is a partial view which leads into the detriment of the quality of care provided.
Consequently, through this study we explore the meaning of living with advanced cancer from the perspective of the sick person. That is, to question what is and what it means for the sick person the experience of living with advanced cancer.
A study following the phenomenological-hermeneutical method of van Manen s phenomenology of practice was conducted to study the phenomenon as it is lived. This kind of research starts in the lived experience and returns to it by means of the phenomenological text. Through this text we not only describe and analyze the lived experience, but immediately evoke an understanding of the essence of the meaning of the experience of living with advanced-stage cancer that would not otherwise be possible to convey.2017-08-07T00:00:00Z